Hepatitis C Challenge: Hep C Caring Ambassadors Program
HepC Choices

Hepatitis Leadership Corps

While more than 5 million Americans are living with chronic hepatitis B or C, for most Americans, viral hepatitis is still a silent epidemic. The Centers for Disease Control and Prevention has estimated that up to 75% of the hepatitis C positive and 65% of the hepatitis B population are unaware of their status. The initial quiescent nature of the disease increases the difficulty of raising awareness of the potential seriousness of the high prevalence of viral hepatitis in the population, and hence, the urgent need for new leaders in every community to develop a collective voice calling for higher prioritization of hepatitis B & C on local, regional, and national public health agendas.

To increase hepatitis B and C awareness, the Caring Ambassadors Program is starting a community training/mentoring program entitled, Hepatitis Leadership Corps. The program will be modeled after the successful advocacy training developed by national breast cancer advocates beginning in the 1980s, the Susan G. Koman Advocates in Science Training. According to the Susan G. Komen for the Cure (formerly the Susan G. Komen Breast Cancer Foundation), “Breast cancer advocacy efforts contributed to a more than quadrupling of federal funding for breast cancer research in the 1990s.” Participants will receive one-on-one training in Washington DC and monthly training webinars from experts in the field.

The goal of the Hepatitis Leadership Corps is to have one leader in health policy advocacy within each state, and one for each health sub-committee member in key jurisdictions, by the end of 2013. In addition, the 2014 goal is 2013 leaders will spearhead training of other advocates resulting in one Hepatitis Leader in effective health policy advocacy disseminating his/her expertise in every congressional district.

Learning Objectives:

At the end of 2013 participants in the Hepatitis Leadership Corps will be able to:

  • Teach other patients community engagement
  • Demonstrate leadership in their community
  • Engage policy makers at the local, state and federal level

CAP is currently recruiting leaders in the following congressional districts (click for a map)

District: 12, Representative Gus Bilirakis (FL)

District: 11, Representative Phil Gingrey (GA)

District: 19, Representative John Shimkus (IL)

District: 1, Representative Ed Whitfield (KY)

District: 8, Representative Mike Rogers (MI)

District: 6, Representative Fred Upton (MI)

New Jersey
District: 7, Representative Leonard Lance (NJ)

North Carolina
District: 2, Representative Renee Ellmers (NC)

District: 16, Representative Joe Pitts (R)

District: 18, Representative Tim Murphy (R)

District: 7, Representative Marsha Blackburn (TN)

District: 26, Representative Michael C. Burgess, M.D. (R)

District: 6, Representative Joe Barton (R)

District: 9, Representative Morgan Griffith (VA)

District: 5, Representative Cathy McMorris Rodgers (WA)

If you wish to complete the application, please email lorren@hepcchallenge.org.

Please note: Due to funding restrictions there are a limited number of slots for this program. Not everyone will be accepted into the Hepatitis Leadership Corps. All materials developed will be made publicly available on our website.

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Hepatitis C can show no symptoms until advanced liver damage develops.

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