Organizations and Support Groups
National Hepatitis C Advocacy Council
P.O. Box 1748
Oregon City, OR 97045
Phone: 503-632-9032
Fax: 503-632-9031
Internet address:
http://www.hepcnetwork.org
The organizations listed below with an asterisk (*) are members
of the National Hepatitis C Advocacy Council. The National Hepatitis C Advocacy
Council is an association of organizations that creates a unified voice,
promotes ethical guidelines, and improves quality of services for people
affected by hepatitis C. From this Internet address, you can reach all member
sites.
AIDS Community Research Consortium (ACRC)
1048 El Camino Real, Suite B
Redwood City, CA 94063-1633
Phone: 650-364-6563
Fax: 650-364-9001
Internet address:
http://www.acrc.org
ACRC's mission is to improve health and quality of life through
compassionate programs that address prominent and emerging public health
concerns.
AIDS Treatment Data Network (The Network)
611 Broadway, Suite 613
New York, NY 10012
Phone: 212-260-8868 or (800)734-7104, ext. 16 (toll free in New York)
Fax: 212-260-8869
Internet address:
http://www.atdn.org
The Network is an independent, nonprofit, community-based
organization founded in 1988. The Network provides local and national services
to people with HIV and coinfected with HCV/HIV. The Access Project (TheAccessProject@aol.com)
is the agency's national treatment advocacy and access program. We advocate for
patients and assist providers in obtaining treatments for hepatitis, HIV, and
AIDS related conditions. The Network provides free, intensive case management
services to people who are HIV positive. Specialized case management and
treatment adherence programs are available for people in New York who are
coinfected with HIV and HCV. National treatment information and counseling can
be obtained via e-mail at network@atdn.org or by telephone.
American Liver Foundation *
75 Maiden Lane, Suite 603
New York, NY 10038-4810
Phone: 212-668-1000 or 800-676-9340
Fax: 212-483-8179
Internet address:
http://www.liverfoundation.org
The American Liver Foundation is a national, voluntary,
nonprofit health agency dedicated to preventing, treating, and curing hepatitis
and all liver diseases.
The Ark Hepatitis C Support Group
719 Bakeway Court
Indianapolis, IN 46231
Phone: 317-838-0002
The Ark is a hepatitis support group facilitated by people
infected with the hepatitis C virus. The group seeks to help HCV patients gain a
positive outlook through education and emotional support.
Connections
P.O. Box 4142
Bozeman, MT 59772-4142
Phone: 406-388-1262
E-mail:
caseyconnections@msn.com
Connections' mission is to support and encourage positive life
changes in all participants of their programs. Their goal is to lower the
recidivism rate in Montana, and create healthier and safer communities in which
to live. They believe in the power of knowledge and education, as well as
supporting each other through life's journey. Their support groups are open to
people living with hepatitis C, their families, and interested members of the
general public.
HCV Prison Support Project
PO Box 41803
Eugene, OR 97404
Phone: (541) 607-5725, 866-HEPINFO (437-4636)
The toll free number is for released prisoners needing information about
hepatitis C resources and support.
Internet address:
http://www.hcvinprison.org
The HCV Prison Support Project was founded by the Hepatitis C
Awareness Project. Their mission is to provide education and support to
prisoners infected with hepatitis C or coinfected with HIV/HCV. To accomplish
this mission, they offer seminars, workshops, and support groups both inside and
outside of correctional facilities. Hepatitis C information packets are
distributed to any interested party. This group advocates for better, more
humane treatment of incarcerated persons living with hepatitis C.
Hep C Advocate Network (HepCAN) *
P.O. Box 3003
Longview, TX 75606
Phone: 903-291-9700
Internet address:
http://www.hepcan.org
HepCAN is devoted to legislative changes for more testing and
treatment of HCV infected individuals on the state and national level. They also
work to increase professional education about hepatitis C.
Hep-C Alert *
660 Northeast 125th Street
North Miami, FL 33161
Phone: 877-HELP-4-HEP
Fax: 305-893-7998
Internet address:
http://www.hep-c-alert.org
Hep C Alert is an educational nonprofit organization working to
raise public awareness and assist people affected by hepatitis C.
Hep C Connection *
1177 Grant Street, Suite 200
Denver, CO 80203
Phone: 303-860-0800 or 800-522-4372
Fax: 303-860-7481
Internet address:
http://www.hepc-connection.org
Hep C Connection provides a hepatitis C network and support
system to assist hepatitis C-challenged individuals and their families.
Hepatitis C Action & Advocacy Coalition
(HAAC)
James Learned
300 8th Avenue, # 5A
Brooklyn, NY 11215
E-mail:
James_Learned@Prodigy.net
Brian Klein
530 Divisadero Street
Box 162
San Francisco, CA 94117
E-mail:
HAAC_SF@hotmail.com
HAAC is a grassroots, volunteer group of individuals committed
to nonviolent, direct action to end the hepatitis C crisis. They work to provide
access to life-extending treatments to people with hepatitis C, foster effective
prevention efforts, encourage sound public health policies, and ensure adequate
funding and resources for the care, treatment, and prevention of hepatitis C.
They do not accept money from pharmaceutical companies.
Hepatitis C Association*
1351 Cooper Road
Scotch Plains, NJ 07076
Phone: 866-437-4377
Fax: 908-561-4575
E-mail: info@hepcassoc.org
Internet address:
http://www.hepcassoc.org
The Hepatitis C Association focuses on educating the public,
creating awareness, promoting organ donation, and offering support to hepatitis
patients. They do this through publications, an Internet site, a 24-hour
toll-free support line, awareness pins, and educational programs.
Hepatitis C Awareness Project
PO Box 41803
Eugene, OR 97404-0520
Phone: 541-607-5725
E-mail:
hepcaware@aol.com
The Hepatitis C Awareness Project is a grassroots organization
in Oregon dedicated to increasing awareness about viral hepatitis, and educating
the community about HCV prevention, diagnosis, and treatment. They are active in
prison outreach and needle exchange. They produce a monthly newsletter for the
state legislature and support group members.
Hepatitis C Support Project *
P.O. Box 427037
San Francisco, CA 94142-7037
Phone: 415-587-8908
Internet address:
http://www.hcvadvocate.org
Internet address:
http://www.hbvadvocate.org
The Hepatitis Support Project offers support to those who are
affected by the hepatitis C virus (HCV). Support is provided through information
and education, and access to support groups. The Project seeks to serve the HCV
community and the general public.
HCV Support, Inc.
P.O. Box 1077
South Dennis, MA. 02660
Website: http://hcvsupport.org/
This is an informational forum and chat room for persons with Hepatitis C. A place to post questions and share personal experiences regarding hepatitis C. It’s a place to learn and obtain knowledge from those who have been there, as well as from those just starting their journey.
Hepatitis C Meditations
Internet Address:http://www.HepCMeditations.org
We offer a new tool to meet the challenges that hepatitis C brings. A CD and booklet were created from our expertise and experience – Margo as the developer of Applied Meditation and Robin as a health educator and person with hepatitis C. It has helped many people with hepatitis C to feel better and find their way to better health. Enjoy the sample meditation and then treat yourself to the full CD. You’ll get a taste of some of the benefits of the 3 longer meditations on Self-Care for Hepatitis C: Applied Meditation for a Healthy Liver. The more you listen, the better you feel.
H.E.A.L.S of the South *
152 Little Brook Drive
Woodstock, GA 30188-1939
Phone: 850-443-8029
Internet address: http://www.healsofthesouth.org/
The goal at HEALS is to expand awareness about liver health
through educational programs, literature, and public speaking. Young people,
veterans, minorities, and prison populations are some of the groups targeted by
HEALS. By educating the public, they hope to aid in the prevention of hepatitis
in all its forms.
Hepatitis Education Project *
The Maritime Building
911 Western Ave #302
Seattle WA 98104
Internet address:
http://www.hepeducation.org
The Hepatitis Education Project works to raise awareness about
the facts concerning hepatitis patients and the resources available to help
those who live with the disease.
Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904-2901
Phone: 301-622 4200
Internet address:
http://www.hepfi.org/
Hepatitis Foundation International works to increase awareness
of the worldwide problem of viral hepatitis, and to educate the public and
health care providers about its prevention, diagnosis, and treatment.
Liver Health Magazine *
523 N. Sam Houston Parkway East, Suite 300
Houston, TX 77060
Phone: 281-272-2744 Ext. 132
Fax: 281-847-5440
Internet address:
http://www.hepatitismag.com/
Liver Health is the only national magazine dedicated to
people with hepatitis B and C. The magazine is a bimonthly resource guide to
assist hepatitis patients and their families in taking control of their health
care by providing current, comprehensive information in one source.
Hepatitis Prevention, Education, Treatment
and Support Network of Hawaii (HEPTS or Hepatitis Network of Hawaii) *
3254 Olu Street
Honolulu, HI 96816
Phone: 808-221-6204
Fax: 808-758-5797
E-mail: KenAkinaka@aol.com
HEPTS is the only hepatitis B and C advocacy organization
in Hawaii. It offers educational presentations and training opportunities for
people with hepatitis and health care professionals. HEPTS members wrote and
helped passed a state hepatitis C resolution in 2003 and were instrumental
in having all Hawaiian Congressional Delegates become cosponsors of The National
Hepatitis C Epidemic Control and Prevention Act. HEPTS helps facilitate the
two support groups in Honolulu including HepCats, the oldest hepatitis support
group in Hawaii. Establishing support groups is one of the missions of the
organization. HEPTS is currently involved in promoting free and low cost hepatitis
B and C test vouchers from the Jade Ribbon Campaign. The organization is planning
a new program called Case Management Without Walls. The program will utilize
part-time volunteer case managers, social workers, counselors, outreach
workers and others from our faith communities.
Hepatitis Research Foundation *
RR 2 Box 12
Verbank, NY 12585
Internet address:
http://www.heprf.org
The Hepatitis Research Foundation's mission is to raise money
for research into new treatments for hepatitis.
Hepatitis Resource Network*
929 E. Main Ave., Suite 320
Puyallup, WA 98372
Phone: 866-HEP-NTWK
Fax: 253-446-9629
Internet address:
http://www.h-r-n.org
Their mission as a non-profit 501(c)(3) organization is to
broaden the number of physicians and Health Care providers who treat and manage
chronic viral hepatitis in patients with and without HIV co-infection.
H:OPE*
111 Harding Ave
Long Beach, NY 11561
Phone: 516-889-1141
Internet address:
http://www.hope4hcv.com
Hepatitis C: Organization for Prevention & Education
(H:OPE) was born at the 2002 Harm Reduction Conference. Members of the four
major medication assisted treatment advocacy organizations collaborated to
create H:OPE to deal with the problem of HCV in the opiate addict population.
H:OPE members ATWatchdog, AFIRM, ARM, and VAMA are working together for the
addicted population adversely affected by HCV.
Latino Organization for Liver Awareness (LOLA)
1560 Mayflower Avenue
Bronx, NY 10461
Phone: 718-892-8967
Internet address:
http://www.lola-national.org
LOLA is a bilingual, bicultural, volunteer organization
dedicated to raising awareness of liver disease through prevention, education,
and treatment-referral services.
LiverHope, Inc.*
16807 Canterbury Drive
Minnetonka, MN 55345
Phone: 952-933-0932
Internet address:
http://www.liverhope.com
LiverHope provides support, promotes education, generates
awareness and advocates for quality medical care for all people with hepatitis
in the metropolitan Minneapolis and St. Paul area of Minnesota.
Missouri Hepatitis C Alliance (MOCHA)*
10800 E. Walnut Dr.
Centralia, MO 65240
Phone: 573-682-1714
E-mail:
bburkett@socket.net
MOHCA hosts three area support group meetings on a regular
basis. They also provide information for patients, families, and health care
providers.
National Hepatitis C Coalition, Inc.
P.O. Box 921
Smyrna, TN 37167
Phone: (615) 355-8604
Internet address:
http://nationalhepatitis-c.org
The National Hepatitis C Coalition was the first nationwide
coalition of hepatitis C patients and their families. It is a nonprofit
organization that provides education and support through on-line communication,
a 24-hour HepLine, and grassroots support groups across America.
New Mexico Hepatitis C Alliance
PO Box 1106
Albuquerque, NM 87048-1106
Phone: 505-314-6555
Email: info@nmhepc.org
Website: http://nmhepc.org
The New Mexico Hepatitis C Alliance advocates for equal access to quality hepatitis C treatment, information, education, prevention, and support services for all individuals, respects the rights of each individual to make his or her own decisions, acknowledges the value, integrity, and privacy of each individual, regardless of infection or risk status, strives for honesty and accountability in our relationships with each other, with partner and collaborating organizations, and with communities and makes decisions based on accurate, up-to-date information and evidence.
SAGE Project
1275 Mission Street
San Francisco, CA 94103
Phone: 415-905-5050
Internet address:
http://www.sageinc.org
The SAGE Project is women working together to heal from the pain
and trauma of abuse and to find alternatives to a life of drug addiction,
violence, and prostitution.
Strengthened By Grace Ministries
10515 Blue Ridge Blvd, Suite 207
Kansas City, MO 64134
Phones: 816-516-0188/816-767-8472
Toll-Free: 888-436-HEPC
Website: http://www.hepcmo.org/
Strengthened by Grace Ministries/ HEP C-MO, a national, not-for-profit Christian organization whose mission is to improve the health status of people in underserved communities by building the capacity of faith communities to address life-threatening diseases, especially Hepatitis C and HIV/AID. HEP C-MO's achievements have enabled communities of color to become leaders in preventing the transmission of HCV and HIV/AIDS by providing screening, testing, treatment and counseling services (Christian Health and Wellness Clinic), a weekly HEP C Telechat conference, along with comprehensive educational programs and support to encourage those infected to seek and maintain treatment.
Veterans Aimed Toward Awareness (VATA)*
111 West Main St.
Middletown, DE 19709
Phone: 302-378-1415
Fax: 302-633-5415
Internet address:
http://www.veteranshepaware.com
VATA is a member-run organization of veterans. Their outreach
and advocacy is by and for the men and women who served in the nation's military
services and their families. VATA seeks political and social change within
the veteran's health system, the community, our state, and our country. VATA
states,
"We believe that all people have the right to be free from chronic illnesses
that rob them of productive and satisfying lives. We believe that certain
conditions, including substance abuse, dependency disorders, and hepatitis
C, have profound consequences on productive living in our community. We will
not tolerate silence or inaction on issues or diseases that disenfranchise
or stigmatize the American veteran and his or her family."
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