Caring Ambassadors Program
Webinar Series
The Caring Ambassadors Program
in partnership with the National Viral Hepatitis Roundtable and Hepatitis
C Advocates United is pleased to announce our new Webinar series. Each
month we will be hosting an interactive educational webinar on viral
hepatitis. We hope you will actively participate as we collectively augment
our knowledge base from experts in the field.
Webinar Details:
Title: Hepatitis C Patient Assistance Programs
Date: 10/26/11
Presentation Schedule: Each Company will do a 15 minute presentation followed by 15 minutes of Q&A.
Merck CARES 2:30 PM EST/ 11:30 AM PST
Vertex GPS: Guidance and Patient Support 3:00 PM EST/ 12:00 PM PST
Genentech Access Solutions Program 3:30 PM EST/ 12:30 PST
Registration Link: https://caringambassadors.ilinc.com/register/fmcmtmw
Please log in at least 10 minutes prior to the start of the program to ensure connectivity.
FDA Teleconference - May 23, 2011
The Food and Drug Administration (FDA) invites you to participate in a teleconference briefing to discuss two Direct Acting Antivirals (DAAs) for the treatment of hepatitis C, boceprevir and telaprevir, that were discussed at an April 27 -28, 2011 meeting of the FDA Antiviral Drugs Advisory Committee. DAAs represent a significant addition to the treatment approach for many patients. However, the dosing regimens may be complex, and there are treatment issues about which health care providers and patients should be aware.
The teleconference will be held on Monday, May 23, 2011 from 3:30 PM to 4:30 PM EDT. The toll-free number is 888-324-7513 . The passcode is FDA.
Following a brief introduction by Margaret Hamburg, Commissioner of the Food and Drug Administration, the briefing will provide an overview of the clinical trials, primary efficacy, safety, and complexity of dosing regimens. The briefing will consist of presentations by Debra Birnkrant, M.D, Director, and Jeffery Murray, Deputy Director, Division of Antiviral Products, Center for Drug Evaluation and Research (CDER), followed by an opportunity for questions from call participants. The briefing will be moderated by Richard Klein, FDA Office of Special Health Issues.
A replay will be available for 30 days, beginning approximately one hour after the briefing call ends.
The recall number is 1.866.419.2882. No password is required.
Alternatively, you can Download Audio Recording (22 MB) (http://www.fda.gov/ForConsumers/ByAudience/ForPatientAdvocates/ucm256712.htm)
The Community Response Webinar
The recording of HHS Action Plan - The Community Response is available.
To view this recording: https://caringambassadors.ilinc.com/join/ppsmrth
Date & Time: May 16, 2011 at 12:00 PM Pacific Time
On May 12, 2011 HHS will release the first ever national strategy for viral hepatitis. Join us for this informative webinar as we explore what the plan does, and what it does not do, from the community perspective. Learn how you can use the plan to support the addition of viral hepatitis services into local health policy. As always, we will leave plenty of time for questions and answers.
About the Presentation Team:
Ryan Clary
Mr. Clary is the Director of Public Policy at Project Inform. He advocates at the national, state, and local levels on HIV and hepatitis C policy issues. He is a co-founder of Hepatitis C Advocates UNITED!, a national grassroots coalition of advocates working to increase the federal government’s response to the HCV epidemic.
Daniel Raymond
Mr. Raymond is the Policy Director for the Harm Reduction Coalition in New York and a Steering Committee member of the National Viral Hepatitis Roundtable. His work focuses on syringe access, HIV, hepatitis C, and overdose prevention. He has worked in the field of harm reduction and syringe exchange for two decades, and provided testimony to the Institute of Medicine on hepatitis C prevention for people who inject drugs.
Lorren Sandt
Ms. Sandt is the co-founder and Executive Director of the Caring Ambassadors Program. She has managed the Hepatitis C Program of the Caring Ambassadors Program since its inception in 1999. Lorren is a co-editor and a contributing author, to Hepatitis C Choices, 4th Edition, a one-of-a-kind, patient-centered book authored by a team of more than 25 multi-disciplined experts in hepatitis C. She has worked on policy changes at both the state and federal level since 2001. Lorren is the Chair of the National Viral Hepatitis Roundtable, a member of the Hepatitis Community Advisory Board, the Fair Pricing Coalition, a member of the Hepatitis Appropriations Partnership, and co-moderator of Hepatitis C Advocates UNITED.
Colin Schwartz
Mr. Schwartz is the Manager, Viral Hepatitis/Government Relations for the National Alliance of State & Territorial AIDS Directors (NASTAD). In this role, he provides program and policy assistance to state health department viral hepatitis programs and advocates on their behalf with the Administration, Congress and Federal Agencies. Mr. Schwartz is actively involved in several national hepatitis advocacy coalitions including serving as the Coordinator for the Hepatitis Appropriations Partnership (HAP). He has policy experience in HIV and viral hepatitis, comprehensive sex education and sexual health, with expertise on Congressional Appropriations for public health programs.
To register for this webinar: https://caringambassadors.ilinc.com/register/zkycvfp
To join this webinar: https://caringambassadors.ilinc.com/join/zkycvfp
Dial-In: 1-800-201-2375 or 1-469-759-7753 Passcode: 327238
Webcast Information for the April 27 & 28, 2011, Antiviral Drugs Advisory Committee (AVDAC) Meeting:
The FDA plans to provide a live webcast of the April 27 & 28, 2011, meeting of the Antiviral Drugs Advisory Committee. Please note that the webcast will not display until the meeting begins at approximately 8:00 a.m. EDT on April 27 & 28, 2011. Also, while the FDA is working to make webcasts available to the public for all AC meetings held at the White Oak campus, there are instances where the webcast transmission is not successful; staff will work to re-establish the transmission as soon as possible. FDA plans to post archived webcasts after the meeting, however, in cases where transmission was not successful, archived webcasts will not be available.
The meeting webcast can be accessed at the following web address: https://collaboration.fda.gov/adac427/
Note: At the access page, please sign in as a guest. No password is required. See attached PDF file for more info.
Meeting materials for FDA's committee for telaprevir:
http://www.fda.gov/AdvisoryCommittees/Calendar/ucm247242.htm
http://www.fda.gov/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/AntiviralDrugsAdvisoryCommittee
Health Reform 101: Learn what people living with hepatitis may gain from health reform and how we can all defend it.
Meeting Description:
We are approaching the one year anniversary of the Affordable Care Act being signed into law. This law has the potential to help many people living with and at risk for hepatitis B and C. However,
the law continues to be under attack by many in Congress who want to repeal it and/or defund it.
This webinar will provide an overview of key provisions in the law and what they mean for our community. We will also provide tips on how you can communicate with your Members of Congress at home
about the need to protect this law.
Date: Thu, Mar 17, 2011
Time: 03:00 PM EDT
Duration: 1 hour
Register: https://cc.readytalk.com/r/1yhevj1ltpge
Featured speakers:
- Anne Donnelly, Director of Health Care Policy, Project Inform
- Rachel McLean, California Viral Adult Hepatitis Prevention Coordinator
Sponsored by Hepatitis Health Action, the Hepatitis Appropriations Partnership, the National Viral Hepatitis Roundtable, Caring Ambassadors Program, Association of Asian Pacific Community Health
Organizations.
Title: Hepatitis Advocacy At Home
Our elected officials have told us again that they want to hear from their constituents. They have set aside time at home to listen. It is up to you to speak. Learn what simple action steps you can
take next week to help people living with hepatitis B or C.
The recording of "Hepatitis Advocacy At Home" is available. To view this recording:
https://caringambassadors.ilinc.com/join/jjtrzmk. Please login to review the recording.
About the Presenters
Corinna Dan, RN, MPH, is the Hepatitis B Fellow at the Association of Asian Pacific Community Health Organizations (AAPCHO).
Colin Schwartz, Colin Schwartz, Senior Associate, Viral Hepatitis/Government Relations National Alliance of State & Territorial AIDS Directors
Webinar Details:
Title: Hepatitis Advocacy At Home
Date & Time: 02/18/2011 at 12:00 PM Pacific Time/ 3PM Eastern Time
Duration: 1 hour(s)
Alert! Funding
for Health Care Reform and CDC’s Viral Hepatitis Program are in Jeopardy (PDF format)
This webinar is a collaborative effort of the Caring Ambassadors Program (CAP), Hepatitis Appropriations Partnership (HAP), National Viral Hepatitis Roundtable (NVHR) and Association of Asian Pacific Community Health Organizations (AAPCHO).
Please distribute widely!
Leveraging the IOM Report on Viral Hepatitis
Webinar Audio and Slide Presentation: Leveraging the IOM Report
The National Viral Hepatitis Roundtable, in partnership with the Caring Ambassadors Program are pleased to announce a webinar on January 12, 2010, for advocates to learn about the Institute of Medicine's Report on Viral Hepatitis that is being released to the public on Monday, January 11, 2010. Hear what it says and learn how you can leverage the findings to advocate for viral hepatitis programs and services in your area.
